It can be a very stressful and confusing time after receiving a diagnosis such as Parkinson’s, please find 10 useful facts below on where to start.
- You must tell the DVLA if you have Parkinson’s disease. Here is the page on the gov.uk site which takes you to the forms you need to fill in to let them know.www.gov.uk/parkinsons-disease-and-driving.
- NHS choices gives a very clear overview of Parkinson’s disease symptoms, causes, treatment and advice on living with Parkinson’s. There is also a box on this page for you to look for local services for Parkinson’s disease signposting you to local groups and organisations that can help.www.nhs.uk/Conditions/Parkinsons-disease.
- This You Tube video featuring Dr Shapira is worth spending forty minutes watching if you want to get a good understanding of which part of the brain is affected (the part that’s responsible for the ‘auto-pilot’ part of movement) and what’s happening to dopamine (the messenger from one nerve cell to another). He talks through the history of Parkinson’s, the causes (no environmental causes known), the symptoms and most importantly the treatments and the research that’s ongoing. He explains the main drug treatments- Levodopa, Dopamine agonists, MAOB inhibitors and Anticholinergics- and how treatment might progress over time.
- Medication is key to treating the symptoms of Parkinson’s. Taking the medicines at the right time is key to getting the best outcomes and being able to understand if the medication is getting the right results. Medicine management solutions are therefore really important.
We’ve got a wide selection of pill boxes and reminder gadgets here.
- “Simple hacks for life with Parkinson’s” is a TED talk featuring designer Mileha Soneji. In this short video Mileha helps you to understand how visual cues affect ‘freezing’ and the auto-pilot of movement not working as it should.www.ted.com/talks/mileha_soneji_simple_hacks_for_life_with_parkinson_s.
- The father of Spring Chicken’s founder, Tony Gregory, was diagnosed in 2012.You can read his blog posts here.
- Parkinson’s UK is at the forefront of activity aiming to drive “better care, treatments and quality of life”. They have local teams and offer local support.www.parkinsons.org.uk.
- “The invention that helped me write again”. This is a really inspiring news feature the BBC ran featuring Emma Lawton, a graphic designer with Parkinson’s, and Haiyan Zhang who invents a watch which helps Emma’s tremors.www.bbc.co.uk/news.
- There are a couple of exercise programmes which have been shown to have a positive impact on mobility for people with Parkinson’s. The first is called “BIG” which works on exaggerated movements to overcome some of the loss of smooth movements.www.lsvtglobal.com/what-is-big.
- The other is the Alexander Technique which can help improve the fluidity of movement and improvements in posture which can have a surprisingly big impact on mobility for people with Parkinson’s. Here is a link to the research papers.alexandertechnique.co.uk.
Finally, there are lots of products out there that can help. We’ve pulled together what we think are the best selection for medication management, dressing (including shirts with magnetic closures), managing in the kitchen, eating and drinking, getting around, pain control, comfort and sleeping. Click here to see our selection.
Any information of a medical nature on this website is given to provide a general understanding of a medical condition or conditions.
No patient/doctor relationship is to be inferred and you should seek medical advice from a qualified practitioner.
Nothing on this site should be used as a substitute for competent advice from a qualified medical practitioner.