Parkinson's nurses
In my experience, the role of the Parkinson's Nurse is central to the successful management and care of Parkinson's patients. My Nurse told me "Our job is to enable you to have the best quality of life available to you."
This illness has many different aspects to it and a Parkinson's Nurse specialises in it and so has an expert and detailed knowledge of it.
They take some pressure off Consultants' waiting lists. They are usually attached to specialist departments of Neurology as part of a team. They often educate other nursing staff about Parkinson's. They call upon physiotherapists, speech and language experts and others where necessary.
It was around three years after diagnosis that I first saw a Consultant {other than the one who had diagnosed me}. I now see him annually. I also see my Parkinson's Nurse annually and the appointments are so scheduled that I have an appointment at the hospital once every six months.
My Nurse is called Mabel and is based at the JR Hospital in Oxford. She is a force of nature: clearly an expert, positive, optimistic, energetic and enthusiastic. I knew instantly that she would be good for me.
Mabel referred me to specialist physiotherapists, who were part of the team. They too are blessed with the same disposition as Mabel. The first physiotherapist I saw thought that adjustments were needed to my medication. She reported back to Mabel. Mabel saw me again at short notice. She agreed to the changes to the medication.
Mabel was, however, very concerned that I should take my tablets strictly on time. She explained that failure to do so would produce a sub-optimal performance.  Sticking to the time-table I find difficult. I persevere in order to avoid incurring Mabel.s displeasure!
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